2025-03-11

Grantee: 13 Song OO

Applicant's profile

Applicants

Song OO

Age

40 years old

Diagnosis

Spinal muscular atrophy (SMA)

The case images are depicted by AI based on the case story

Summary

He was diagnosed with Spinal Muscular Dystrophy (SMA) in August 2018 and is currently being treated with Spinraza on a maintenance dose regimen as directed by his physician. He is still unable to walk and needs assistance with all daily activities. Without ongoing treatment, the condition will worsen. He currently lives with his 80-year-old mother, who is his main caregiver. He has no income, and his two older sisters are unable to provide financial support due to their respective family responsibilities. Additional financial support is required to continue treatment in hospital.

Application Status

Inability to walk. Assistance with all daily activities is required. Without ongoing treatment, his condition is expected to worsen. Government subsidy support is still insufficient, and the referrer is advised to apply for a subsidy to solve the problem of temporary hospital treatment first.

Economic woes

No personal income (low-income households). He lives with his 80-year-old mother, who is his caregiver. The two sisters were unable to provide financial support due to their respective family obligations, which affected their access to hospital

Apply for a grant

Apply for financial assistance from the Hope Fund of Aibang Charity Trust to cover the cost of medical travel during the treatment period, with a one-time subsidy of NT$30,000 or a project subsidy.